Care Coordination and Survivorship

Person-centred care treats patients as whole people rather than only as diagnoses or service users. Stakeholders felt HIV-specific concerns and support needs were underrepresented in research and absent from clinical guidance. Person-centred care emphasizes partnership among patients, informal caregivers when relevant, and healthcare professionals. Person-centred care should be shaped by the patient's narrative, needs, goals, resources, capacities, and preferences. The Gothenburg model grounds person-centred care in personhood and uses clinical routines based on narrative, jointly developed plans, and co-created care plans. The UK person-centred coordinated care model expands the Gothenburg model with care coordination domains such as communication, goals, shared decision-making, planning, and transitions. Fragmentation between oncology and HIV services may create gaps in communication and survivorship support. People living with HIV may face fragmented care across medical specialties during cancer treatment. Future clinical guidance should be integrated, equitable, person-centred, and responsive to this population's complex needs. Stakeholders called for exploratory research, pro…