Co-design Research

Co-design and participatory research are framed as research conducted with people rather than on people. Involving family caregivers in co-design research remains difficult despite the value attributed to co-design approaches. Marginalising caregiver perspectives can bias findings toward other stakeholder groups and weaken alignment with caregiver needs. Stakeholders may contribute to research phases such as question formulation, data collection planning, analysis, and dissemination.