Information Sharing

Oral consultations with healthcare providers were valued because they allowed patients to ask questions relevant to their individual circumstances. Participants who engaged with multiple information formats reported better understanding and recall than any single format alone. The animated film was particularly notable for memory retention, with one participant reporting it went directly into memory without repeated review. Participants rated available patient information platforms negatively. Some staff used workarounds such as photographing notes, manually uploading them, or asking families for additional information. Separate computer systems were identified by every participant as the major barrier to integration. Key criticisms of online health information were that it was outdated, unclear, and not tailored to patient needs. Participants felt that media coverage distorted the care situation and trivialised the severity of post-COVID. Limited information sharing caused uncertainty about decisions, care delays, and duplicated services. Without integrated records, staff expected delays, duplication, and poor coordination to persist. The abundance of online information created c…