Patient Experience

Patients reported feeling supported, listened to, and treated without judgement in T1DE services. CFAK was generally experienced positively by patients. Patient-defined outcomes included health, resilience, well-being, quality of life, coping skills, knowledge, and confidence. Patients valued access to therapy, dietetic advice, and diabetes advice even when services were not fully operational. Patients valued flexible appointment modes and responsive email or phone contact. Patients experienced previous care as fragmented, medicalised, and focused on numbers rather than coping. Women reported significantly more positive CFAK experiences than men, although both groups scored highly. The study concluded that patient experience is an insufficient proxy for healthcare professional well-being. Patient experience did not significantly differ by age category, inequality group, mental health condition, or long-term condition. The overall mean patient experience score was 32.29 out of 35. The patient experience scale had a single-factor structure and excellent internal consistency. Patient experience measures showed no consistent association with sick leave or engagement. Patient experienc…