Patient-Reported Experience Measures

For person-centred care, patient-reported experience matters because the issue is whether patients experience partnership, information-sharing, shared decisions, planning, and coordination. Patient-reported experience measures describe patients' experiences of the care they receive. The review applies COSMIN methodology to assess PREM methodological quality and measurement properties. Western PREMs may be poorly aligned with high power-distance healthcare cultures where patients may not expect autonomy or shared decision-making. Social desirability and courtesy bias can affect PREM responses by discouraging negative reports about care. The candidate items represented lived experiences of person-centred care among people with chronic conditions. PREMs capture patient experiences of communication, respect, shared decision-making, care coordination, and care quality. The review will include PREMs used with adult cancer patients receiving ambulatory palliative care in LMICs. A short robust patient-reported measure can support benchmarking, service evaluation, and quality improvement.