Prior International Studies

This Canadian study differs from prior international work by reaching consensus on formal and informal care use, quality of care, and access barriers and facilitators. The dataset was designed for registry use rather than clinical trials or research studies, with brevity as a primary constraint. Recommended instruments from prior work were too lengthy for registry use, especially for people with Long COVID cognitive impairment and busy clinicians. Prior international tools focused on outcomes and did not adequately capture healthcare experience or access for a Canadian registry.